Love is all you need.

I’ve been thinking (worrying) about my children’s future a lot lately.

Especially O’s I have faith that R will be OK as long as she has people she can rely on for love and support. But O will need a lot more than that.

I’m constantly worrying about what will happen to him when we die.

Who will look after him?

Will they show him love?

What if he ends up being cared for by someone who I haven’t given permission to.

The thought of a stranger looking after him terrifies me. There is such a huge amount of trust involved in handing over a child, or as he will probably be an adult, who needs so much care. I just don’t know if I have it in me.

At the moment where I live there is minimal respite available that is suitable for O. Funding is pretty low and a third of the budget has just been taken away. With the whole Brexit thing happening councils are going to have to tighten their belts further and as some funding comes from the nhs well, we all know what’s happening there.

I’m not ashamed to admit I’m scared for him. Every parent worries about what the future holds for their babies I know I’m no different. I know I’m not alone in this families across the world go through this. I’m also very aware that the care people with special needs need is so much more available here, than in a lot of other countries, for that I am truly grateful.

I just want my children to live their best life for all of their lives.

R will love him no matter what. We have family and friends who I know will be supportive of him. So he won’t be alone. I just need to learn to trust in the meantime that even though funding is low their is still a huge amount of love and kindness around. That’s really all they or anyone else needs. (and snacks)!!!!

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